CHOP

philly has cheese steaks & the BEST eosinophilic clinic

Thanks my new found friends on the Facebook EE group, I've learned there are clinics around the country that specialize in EE! Say what?! Possibly no more "this is a new disease, so we don't really know"? Well I'm sure there will be more of that, but at least they'll be on the same page.

I spoke with Dr. Pix and she is in fast agreement that a team approach is best in treating this disease and keeping Sully fit as a fiddle. CHOP will have a treatment team (GI, Allergist, Nutritionist) who will meet with us in the same room, at the same time, and be able to walk across the lobby to confer on treatment plan for the Sullster! Though we have no qualms about our current team, it is a bit daunting that they are all in different towns, do not know of each other, and have little communication. The best part is they all have knowledge of eosinophilic esophagitis.. and children. BOOM!

A phone call to the intake folk at CHOP, an email download and now I'm off to collect all of his records to start this process. We'll still keep Dr. Pix (she won't escape us that easily) and utilize his current specialists as needed, but CHOP will lead the direction of his EE care. After the mountain of paperwork is completed, wait 6-8 weeks to get an appointment, and we make the three hour trek down there.. one way.. without traffic.